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Young Lupus Patient Guinea Pig Gone Wrong

Discussion in 'Share Your Story Here' started by DesperatelySeekingSusan, Apr 26, 2016.

  1. I was diagnosed with Lupus when I was 23, in PA. I moved to CO 10 years later.. And sought out every possible way to prevent pain. Now I am an addict. I have been doing oxys for over 9 years without fail. I am dyer need of help. I cannot risk losing my job, my career, my wife my son our family.
    I am highly considering a program but no one believes that I am as bad as I am. My wife has hip surgery and there were complications ...she is now an addict too. Now what.
  2. deanokat

    deanokat Community Organizer Community Listener

    @DesperatelySeekingSusan... Welcome to the community and thanks for sharing with us. I'm sorry that you're struggling with opiates. You are certainly not alone. Kudos to you for coming here and looking for support.

    I'm wondering: Have you considered seeing an addiction specialist as a starting point? They can assess your situation and recommend the best course of treatment for you. It's possible that they could help you wean off of the oxys and maybe start you off with an outpatient program. You can search for a doctor in your area by using the American Society of Addiction Medicine's "Find a Doctor" page. Here's the link:

    For what it's worth, my sister has suffered from lupus since she was 18. She's now 56. She has struggled with pain, side effects of medications, hip replacements, etc. It's a horrible disease, for sure.

    Please know that we are here to help and support you any way we can, so don't hesitate to reach out to us. I will keep you and your wife in my thoughts and prayers.

    Sending you peace, hugs, and clean & sober vibes.
  3. Thank you so much for the link. I think the trick is to get us both help (my wife and I) and not interefere with my career as a leader. I work hard and I try hard. I am the only one working in my family and it's a real struggle that I feel no one at my job or my friends would never understand. It breaks my heart but I am not interested in feeling like this anymore. I have said this before...but we started our Suboxone today. Hopefully this takes the cravings away. So far so good. I'm doing way better than I was this morning and last night. I had a total of 30mg of Oxycodone yesterday and so did my wife. That was the end of it.
    We want to be clean, sober and happy in our lives.

    Thanks for your prayers! I'm happy to have found you and this group.
  4. deanokat

    deanokat Community Organizer Community Listener

    We're happy you're here, @DesperatelySeekingSusan. And I wish you both luck with the Suboxone. I know Suboxone takes a lot of criticism from some people, but it's helped a lot of people get off of opiates. My son used it to help him get off heroin, and almost 4 years later he's still clean. The only thing I would tell you is this: Be sure to use the Suboxone under a doctor's supervision and try not to take it for too long, because it can be addicting, too.

    Everyone here is rooting for you, my friend. And your wife, too. Godspeed to you both.
  5. Thanks so very much!!!!!! I'll give my details. When I can complete my days haha.
    deanokat likes this.
  6. So far so good. !!!!!!! 3 days and counting. Lol.
    deanokat likes this.
  7. deanokat

    deanokat Community Organizer Community Listener

    That's awesome, @DesperatelySeekingSusan! Just keep going! :)
  8. Winterybella

    Winterybella Community Champion

    I lost my sister to Lupus many years ago. Many years later and I still feel like we did not do enough or more like we were quite ignorant to the condition. I remember being a young child when she was diagnosed and I will never forget the immense pain she had to endure. In my small country it felt like she was the only one who suffered from this condition and I recall there being only a few doctors who seemed to know anything about how to treat it. Sometimes I would cry as I watch her in pain with tons of pills to take.

    @DesperatelySeekingSusan, I wish I could offer some practical advice, but I can't as I have not educated myself on the illness any further more than 20 years down the road. I am glad that @deanokat was able to offer you some practical advice. He is always such a breath of fresh air:). I am delighted that you are progressing and I look forward to you reaching a comfortable place where you and the family can find some measure of happiness.
    deanokat likes this.